Former CJI DY Chandrachud’s daughter suffers from a rare disease, Nemaline Myopathy. Know all about the disease
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NEW DELHI: Former Chief Justice of India, DY Chandrachud, has recently found himself amid a controversy for continuing to stay in his government-allotted residence beyond the permitted time.
He retired from the post on November 10, 2024, and was officially allowed to stay in the bungalow until May 31, 2025. However, even after the deadline, he has not vacated the premises.
In an interview with Bar and Bench, the former CJI clarified that the delay was not intentional. Most of his belongings have already been packed, and only essential furniture remains.
He assured that the shifting process would be completed within the next 10 to 14 days. One of the key reasons for this delay, he shared, was related to the health and needs of his daughters.
Justice Chandrachud and his wife, Kalpana Das, have adopted two daughters, Priyanka and Mahi, both of whom suffer from a rare medical condition known as Nemaline Myopathy. This genetic disorder weakens skeletal muscles, affecting movement and mobility, and often leads to wheelchair dependency in severe cases.
Due to their condition, he is currently looking for a house in Delhi that is fully accessible for wheelchair users.
Nemaline Myopathy, as explained by Dr. Praveen Gupta of Maringo Asia International Institute of Neuro and Spine, is caused by genetic mutations and affects muscles responsible for activities such as walking, chewing, and breathing.
Symptoms usually appear at birth or in early childhood and may include muscle weakness, facial thinning, spinal curvature, difficulty in swallowing or opening the mouth, and fatigue. While there is no cure for this condition, its symptoms can be managed through physiotherapy, speech therapy, nutritional care, and respiratory support.
For many families, especially those caring for individuals with such rare disorders, finding suitable housing becomes a major challenge. Justice Chandrachud’s situation highlights the broader issue of accessibility for persons with disabilities and reminds us that, beyond titles and roles, personal circumstances often shape public decisions.
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